You're Invited

Just 3 days left to register to guarantee a shirt.

(Deadline October 3rd at 11:59 AM)

Please join RRR and over 20 super heroes, Kevin Briggs' beautiful music and seriously awesome raffle items.

Click HERE to register or learn more.

Click HERE to Like us on FB and HERE to say you are GOING to the Event.

Click here to watch our video. 

If you cannot attend, but would like to make a donation to my page, please click here.

Blessings and Shanah Tovah!

Emily

What Does It Mean to Be a Part of RRR?

Rowe's Research Runners is a super fun, joy-filled event with live music, raffles and superheroes that's family and dog-friendly--all while raising money for Chronic Fatigue Syndrome and related disorders. That's a win, right?!

I'd like to invite you to Register for Rowe's Research Runners which will take place on October 20th at 2 PM at the Pennsylvania Military Museum in Boalsburg:

1. As a Runner

2. As a Runner + A Fundraiser

There seems to be a bit of confusion about what it means to register for RRR, so I'd like to clarify!

Both can be done from anywhere in the world! Or you can show up in person at our State College event.

You Can Run, Walk, Roll or Sit! :) There's Plenty of Other Fun Stuff to Do!

What do these things mean?

As a RUNNER only, you click HERE to register. For $25 you are part of our team, get a RRR t-shirt (shipped FREE if you are out of the area), and become a part of our movement to raise awareness. Being a Runner doesn't mean you need to be able to run. At. All! :) Just come for the party!

As a RUNNER and FUNDRAISER, you click HERE to register and get the same things as above. However, in addition to being a Runner, you are also committing to raising money for RRR. There is no minimum to raise! But EVERY dollar counts. As a Fundraiser, you will post the link to your fundraising page on Facebook to ask for donations and/or email friends and family for donations. 

Big Supporter Dad!

Please NOTE these important dates:

If you are participating virtually and are out of town, please register by September 26th at 11:59 PM to receive your shirt in time for race day.

If you are participating in our State College event, please Register by October 4th at NOON to guarantee a shirt.

**You may register up to and at the event, but we cannot guarantee that we will have a shirt in your size.

RRR has a goal of raising $25,000 this year, which we can do with YOUR help. We would LOVE to see you at the event, as well as have your help in raising funds.

If you are unable to participate in one of these ways, please consider making a donation to my fundraising page HERE. Make sure to watch this VIDEO featuring Dr. Rowe, myself and my co-captain, Colleen, and LIKE us on FB. T-shirts are still for sale, as well, but the deadline is fast approaching (same as above dates for registration).

Thanks so much for your support of RRR!

Onward and Upward!

Emily

Big Reveal: A LOT Excited About This!

Today is Dr. Rowe's birthday, andI'm BURSTING with excitement to have this 5-minute video tribute to share with you all. The video, Dr. Rowe: Compassion and Hope for ME/CFS, features Dr. Rowe, patients and families (including MOI! :) and my co-captain Colleen Marden). It was an incredible experience to be a part of this tribute and I can't think of a better way to show how incredible Dr. Rowe is!

If you are reading in email, HERE is the video

I'd like to use today (and this week), Dr. Rowe's birthday, to shower him with blessings in the form of:

1.New Team Members or Participants in RRR 

    Click HERE to learn more or to register. You may participate in person in Baltimore or State College OR virtually.

2.T-Shirt Purchases 

     ClickHERE to purchase our super soft, on trend T's of which $11 from the sale of each goes to Dr. Rowe's research

3. Donations 

     Click HERE to donate to my fundraising page. My fundraising goal is $8000!

I hope you'll be a part of celebrating Dr. Rowe's birthday in one of these three ways. And I hope, too, that the video helps you to understand more about Dr. Rowe, ME/CFS, and why I have chosen to give back to this human being.

Blessings,

Emily

Like Us!

So that's me, dressed like the abominable snowman because it was quite chilly on October 20th of 2018, asking you today to do me a big favor!

Rowe's Research Runners is using Facebook as our way to spread the word about the event and to share testimonials, raffle items, quotes from Dr. Rowe, t-shirt designs, etc.

Please Like our page. Click HERE.

Please say you are Going or Interested in the event. This way we can get more people to see the event and learn about it! Click HERE.

Thank you to Amy for managing the Facebook page and the website. I could NOT do this without her expertise and gift of time.

Thanks to her daughter for her joyful spirit and for decorating our path last year! :)

Blessings,

Emily

On Sale NOW: RRR T-Shirts

They're back! Our super soft, not scratchy, trendy RRR T-shirts! We are using bella + canvas again this year because we loved the shirts so much last year.

We've switched up the colors a bit this year.

We've also added more size options. (Youth M and L, Adult XS-XXXL)

Purchase by 11:59 PM September 26th for FREE shipping in time for the event.

Here's the scoop:

I encourage you to be a participant--either locally or virtually.

If you are participating virtually or in person at the local event, you will get one of these shirts as part of your $25 registration fee. Being a participant means you're part of the TEAM. You can post the link to your fundraising page on FB, etc. and spread the word. (There is no fundraising minimum.)

Otherwise, you can purchase as many shirts as you would like HERE for $20 each.

Pacey,  MD

That means that more than $11 from each shirt goes to Dr. Rowe's research. 

Patrick and Erin, CA

Let's just say that last year, our t-shirt sales made a BIG dent in our fundraising goal.

Rebekah and Katie, PA

Important Dates:

If you need your t-shirt shipped (FREE shipping!), please place your order by 11:59 PM September 26th. I'll be placing the order for shipped t-shirts on September 27th for you to have in time for Event Day.

Angela, CA

If you need your shirt for the event locally, I will be placing another order on October 4th. Order deadline will be 11:59 PM October 3rd.

Jess and Drew, CO

Last year we had people from all around the country share their photos of themselves wearing their RRR shirts on October 20th in solidarity with those participating in the Baltimore and State College events. As you know, the State College event was a sea of royal blue as well.

Steph, OH

We hope to continue to raise awareness, create connections and raise money for research, and the t-shirts are one way for us to effectively do this.

Rhonda, AL

Thank you for helping us to make Chronic Fatigue Syndrome and Dysautonomia 'common words' with less stigma and more research!

Rachel, MN

I had so much fun getting your texts of you in your t-shirts. Looking at all of these photos of friends across the country in RRR shirts makes me feel all warm and fuzzy inside. 

I am surrounded by amazing people!

Jess, CO

Thank you in advance for your purchase!

Blessings,

Emily

Please SAVE the DATE for RRR!

Our 2nd Annual RRR Surpassed Any Expectations I Could Have Had!

One of the reasons I blog so much less frequently is because of the work I now do to run Rowe's Research Runners. This has been a difficult trade-off, as I really miss blogging. But I also really, really love the rewards of raising money for Dr. Rowe's research, raising awareness, creating connections and feeling that I can give back in new ways.

 I didn't even write about LAST year's event after it happened. (I was a bit crashed out!)

So, this year, I'm trying to be better about sharing more because this event and the work that goes into it occupies so much of my time, energy and heart.

I'm SUPER excited about this year's event and how much it's grown since last year. It's going to be a blast with live music, superheroes, lots of raffle items, kids activities, food and community.

The event will take place exactly eight weeks from today--which might sound far away, but it will be here before we know it! 

Our Baltimore Team! My Co-Captain For This Year is Colleen (far right)

That being said I'd like to ask you to 

SAVE THE DATE 

for the

 3rd Annual Rowe's Research Runners Walk/Run/Roll and Reception in State College, PA on October 20th at 2PM at the Pennsylvania Military Museum.

This is in conjunction with the Baltimore Running Festival which takes place on October 19th, 2019.

You can participate in either location or as a virtual runner.

Please click HERE to learn about RRR, to sign up for the team or register for the event.

Take some time to toodle around on the website as my friend Amy's done a wonderful job capturing the event with photos, descriptions, raffle items, etc.

More details to come, but for now

PLEASE SAVE THE DATE!

Thank you to all of you for your continued support (you've been amazing!)

Blessings,

Emily

It's Time to Roll!

Images by Andrea Harmen

Superheroes. Face painting. Food. Friends. Community. Music. Awareness.

That means Rowe's Research Runners is READY to Roll!

Dysautonomia Awareness Month is here!

I am inviting all of my friends to REGISTER NOW to join us on October 20th for our 2nd Annual Walk/Run/Roll and Reception.

**To guarantee a shirt you must register by October 4**

Our Social Media and Website Volunteer Extraordinaire and her daughter

Registration is $20 and includes your t-shirt (which I will post about tomorrow).

Children under 12 are FREE!

A fundraising goal of $100 is suggested. Please consider posting that you are attending and raising money and see what you can raise. Every dollar truly does count.

Oh! There Goes Dad!

Last year's event was such an amazing success--beyond anything I could have imagined. As a team RRR raised over $20,000 towards research, and our local event connected many people living with these illnesses as well as raised awareness. 

That lead to my desire to make this year's event bigger and try to reach more people.

Raffle!

The raffle items from Dragonfly Therapeutic Massage and Day Spa, Happy Valley Improv and Brenda Horner Artworks are amazing! Bring some extra cash so you can win!

Food!

We will, of course, have food, including our signature cupcakes with blue frosting.

Dogs!

Dogs are welcome!

Why? Because our pets are such an important part of the chronic illness experience.

A band called Sauce (a group of Bellefonte High School seniors) will be playing.

We're keeping the music chill so that people with these illnesses will not be too overstimulated by the sound.

Why music?

Because it, too, is an important part of living with and coping with chronic illness.

New Friends also Living with these Illnesses 

Other people with these illnesses will be there for you to meet. 

#friends

And other friends you know will be there.

#friends

And of course, there will be the Alliance of Heroic Hearts to remind us all that we are superheroes!

There will be face-painting and kids toys too!

#dadandabbie

The event is ready to go.

(You've wondered where I've been, right? Planning this!)

All that we need is for you to be there or be square.

#neighborsfor43years

Let's #goblue #runforrowe and have some fun!

While these may be serious illnesses, this promises to be an uplifting and fun event.

Remember:

Superheroes. Face painting. Food. Friends. Community. Music. Awareness.

See you there!

#rowesresearchrunners

Onward and Upward,

Emily

See YOU on October 20th!

See that guy? 

That's Dr. Rowe jumping for joy over last year's successful event and in anticipation of this year's bigger and better event!

Please check out our website:

https://support.hopkinschildrens.org/rowesresearchrunners

Mark your calendars for October 20th, 2018!

Participants at Last Year's Local Event
We had 50 people for our first walk!

Over the past year, I've been working to create a true community through Rowe's Research Runners, and now I can't wait to tell you all about our local event.

I hope to see as many of you as possible at this family-friendly, dog-friendly, whatever your ability-friendly event!

Our One Mile Walk/Run/Roll 2017

We are so excited about this year's local event in State College featuring Alliance of Heroic Hearts (a perfect fit for the heroes who care for us and the heroic warriors living with chronic illness)!

We will have face painting, games for the kids and food. Plus, kids under 12 are FREE! 

Dogs are welcome!

Our raffle includes 4 tickets to Happy Valley Improv, an original calligraphy print by Brenda Horner Artworks, and a one hour massage from Dragonfly Therapeutic Massage and Day Spa!

Photography credit to Andrea Harmen

Please REGISTER as soon as possible! 

To guarantee you get a shirt, register by October 4th.

(The shirts are super cool! And SOFT!)

Registration is $20. 

PLEASE consider setting a fundraising goal (if you don't meet it that's okay) and spreading the word about your participation in this event and why you are raising money. 

My buddy Bethany :)

In the next few blogs, I'll also be sharing more ways for you to participate, whether it be in Baltimore, in State College or virtually; by being a team member or simply being at the event in State College; or by donating.

However you want to be involved, Rowe's Research Runners welcomes you and thanks you!

We hope to see you on October 20th!

Blessings,

Emily