FAQs

Tuesday, October 01, 2019

Shanah Tovah

Farmer's Market bouquet and Candles Ready to be Lit


Blessings to those of you who celebrate Rosh Hashanah!

May you have a sweet New Year.

May you know love, peace, health and joy.


Spotted this Flower on Our Evening Walk Along the Golf Course


Shanah Tovah!

Blessings,

Emily

Sunday, September 29, 2019

You're Invited



Just 3 days left to register to guarantee a shirt.
(Deadline October 3rd at 11:59 AM)

Please join RRR and over 20 super heroes, Kevin Briggs' beautiful music and seriously awesome raffle items.

Click HERE to register or learn more.

Click HERE to Like us on FB and HERE to say you are GOING to the Event.

Click here to watch our video. 



If you cannot attend, but would like to make a donation to my page, please click here.

Blessings and Shanah Tovah!

Emily




Wednesday, September 25, 2019

What Does It Mean to Be a Part of RRR?


Rowe's Research Runners is a super fun, joy-filled event with live music, raffles and superheroes that's family and dog-friendly--all while raising money for Chronic Fatigue Syndrome and related disorders. That's a win, right?!

I'd like to invite you to Register for Rowe's Research Runners which will take place on October 20th at 2 PM at the Pennsylvania Military Museum in Boalsburg:

1. As a Runner

2. As a Runner + A Fundraiser

There seems to be a bit of confusion about what it means to register for RRR, so I'd like to clarify!

Both can be done from anywhere in the world! Or you can show up in person at our State College event.

You Can Run, Walk, Roll or Sit! :) There's Plenty of Other Fun Stuff to Do!


What do these things mean?

As a RUNNER only, you click HERE to register. For $25 you are part of our team, get a RRR t-shirt (shipped FREE if you are out of the area), and become a part of our movement to raise awareness. Being a Runner doesn't mean you need to be able to run. At. All! :) Just come for the party!

As a RUNNER and FUNDRAISER, you click HERE to register and get the same things as above. However, in addition to being a Runner, you are also committing to raising money for RRR. There is no minimum to raise! But EVERY dollar counts. As a Fundraiser, you will post the link to your fundraising page on Facebook to ask for donations and/or email friends and family for donations. 

Big Supporter Dad!


Please NOTE these important dates:

If you are participating virtually and are out of town, please register by September 26th at 11:59 PM to receive your shirt in time for race day.

If you are participating in our State College event, please Register by October 4th at NOON to guarantee a shirt.

**You may register up to and at the event, but we cannot guarantee that we will have a shirt in your size.

RRR has a goal of raising $25,000 this year, which we can do with YOUR help. We would LOVE to see you at the event, as well as have your help in raising funds.

If you are unable to participate in one of these ways, please consider making a donation to my fundraising page HERE. Make sure to watch this VIDEO featuring Dr. Rowe, myself and my co-captain, Colleen, and LIKE us on FB. T-shirts are still for sale, as well, but the deadline is fast approaching (same as above dates for registration).

Thanks so much for your support of RRR!

Onward and Upward!

Emily

Monday, September 16, 2019

Big Reveal: A LOT Excited About This!


Today is Dr. Rowe's birthday, andI'm BURSTING with excitement to have this 5-minute video tribute to share with you all. The video, Dr. Rowe: Compassion and Hope for ME/CFS, features Dr. Rowe, patients and families (including MOI! :) and my co-captain Colleen Marden). It was an incredible experience to be a part of this tribute and I can't think of a better way to show how incredible Dr. Rowe is!





If you are reading in email, HERE is the video

I'd like to use today (and this week), Dr. Rowe's birthday, to shower him with blessings in the form of:

1.New Team Members or Participants in RRR 
    Click HERE to learn more or to register. You may participate in person in Baltimore or State College OR virtually.

2.T-Shirt Purchases 
     ClickHERE to purchase our super soft, on trend T's of which $11 from the sale of each goes to Dr. Rowe's research

3. Donations 
     Click HERE to donate to my fundraising page. My fundraising goal is $8000!

I hope you'll be a part of celebrating Dr. Rowe's birthday in one of these three ways. And I hope, too, that the video helps you to understand more about Dr. Rowe, ME/CFS, and why I have chosen to give back to this human being.

Blessings,

Emily

Sunday, September 15, 2019

Monday Dog Blog: Neighborhood Convention



We had quite the neighbored convention the other evening while out for a walk! 

Several of the neighborhood pups all got to visit! 

Gershwin, Tovah Rose, Dessa (sheltie), Hazel (pit bull mix) and Lucy (beagle).




Lucy's mom said: "Such a lady" when she saw the pics of Lucy sniffing Hazel's butt. 

The meeting was a joyful one and gave us a smile.

We hope it does the same for you today.

Happy Monday!

Blessings,

Tovah Rose and Gershwin


Friday, September 13, 2019

Music for my Soul



Houston Person Autographs my CD

It's been a while since I've posted about attending live performances, but tonight's had me reflecting on where I've been and where I am now, especially as I think about why I raise money for RRR and do that work. 

Tonight, the Center for the Performing Arts at Penn State kicked off its season with the Emmet Cohen Trio and guest Houston Person, an 84 year old tenor saxophonist. Cohen, a young, new-on-the-scene pianist, is passionate about bringing generations of jazz musicians together.


Chatting with Emmet


Other than listening to a bit of Cohen and Person's music before the performance and reading a couple of articles about them, I didn't know much about their music.

Let's just say that I be-bopped and smiled the whole way through the concert. Those of us who chatted after the concert remarked that a high bar had been set for the rest of the season--and that this was wayyy better than watching the debates!


Houston Person is One Cool Man!


I especially enjoyed chatting with Mr. Person after the event. We talked about how I used to play saxophone too, but didn't continue with it. Instead of showing disappointment in that, he said: "that's okay! We need people who play and listen. We need people who appreciate the music, too! We need both kinds."

I'm finally able to stop longing for the days that I could play and just sit back and enjoy the music. I'm able to appreciate the foundation that playing an instrument and my incredible teachers instilled in me.

I'm thankful and grateful for the performances that we are able to go to.


Cohen and Person Autographs!


Music fills my soul--especially live music and performances (dance, musicals, etc.)--and this concert was exceptional. It was the epitome of joy and unity in a time of divisiveness.


Hey, Emmet and Emily Have Matching Jewish Noses! :) 


But it's not just the music that makes my soul so happy. It's that I can go to these performances now. It's that I can sit near the front. It's that I can walk to and from the car without any problems. It's that I can chit chat with the staff and fellow community members I see there. It's that I can be fully immersed in the experience with only minimal symptoms. (I'm not going to pretend things are *easy* yet.) It's that I can stay afterwards for photo ops and autographs. It's that I can be more fully engaged in this world.

And part of being fully engaged in this world, for me, is having live music and art as part of my life.

I can't wait for more performances this season!

Blessings,

Emily


Wednesday, September 11, 2019

Like Us!




So that's me, dressed like the abominable snowman because it was quite chilly on October 20th of 2018, asking you today to do me a big favor!

Rowe's Research Runners is using Facebook as our way to spread the word about the event and to share testimonials, raffle items, quotes from Dr. Rowe, t-shirt designs, etc.






Please Like our page. Click HERE.






Please say you are Going or Interested in the event. This way we can get more people to see the event and learn about it! Click HERE.




Thank you to Amy for managing the Facebook page and the website. I could NOT do this without her expertise and gift of time.

Thanks to her daughter for her joyful spirit and for decorating our path last year! :)

Blessings,

Emily


Sunday, September 08, 2019

Monday Dog Blog: Fall Days



We love, love, love this weather!

We spend a lot of time hanging out in the yard.

Mommy was excited to catch these sweet photos of us the other day.





We hope we can give you a Monday smile!

Happy Monday!


Blessings,

Tovah Rose and Gershwin

Saturday, September 07, 2019

On Sale NOW: RRR T-Shirts



They're back! Our super soft, not scratchy, trendy RRR T-shirts! We are using bella + canvas again this year because we loved the shirts so much last year.

We've switched up the colors a bit this year.

We've also added more size options. (Youth M and L, Adult XS-XXXL)





Purchase by 11:59 PM September 26th for FREE shipping in time for the event.


Here's the scoop:

I encourage you to be a participant--either locally or virtually.

If you are participating virtually or in person at the local event, you will get one of these shirts as part of your $25 registration fee. Being a participant means you're part of the TEAM. You can post the link to your fundraising page on FB, etc. and spread the word. (There is no fundraising minimum.)

Otherwise, you can purchase as many shirts as you would like HERE for $20 each.


Pacey,  MD


That means that more than $11 from each shirt goes to Dr. Rowe's research. 


Patrick and Erin, CA


Let's just say that last year, our t-shirt sales made a BIG dent in our fundraising goal.

Rebekah and Katie, PA


Important Dates:

If you need your t-shirt shipped (FREE shipping!), please place your order by 11:59 PM September 26th. I'll be placing the order for shipped t-shirts on September 27th for you to have in time for Event Day.

Angela, CA


If you need your shirt for the event locally, I will be placing another order on October 4th. Order deadline will be 11:59 PM October 3rd.

Jess and Drew, CO


Last year we had people from all around the country share their photos of themselves wearing their RRR shirts on October 20th in solidarity with those participating in the Baltimore and State College events. As you know, the State College event was a sea of royal blue as well.


Steph, OH


We hope to continue to raise awareness, create connections and raise money for research, and the t-shirts are one way for us to effectively do this.

Rhonda, AL


Thank you for helping us to make Chronic Fatigue Syndrome and Dysautonomia 'common words' with less stigma and more research!



Rachel, MN

I had so much fun getting your texts of you in your t-shirts. Looking at all of these photos of friends across the country in RRR shirts makes me feel all warm and fuzzy inside. 

I am surrounded by amazing people!

Jess, CO

Thank you in advance for your purchase!

Blessings,

Emily




Wednesday, September 04, 2019

Finding My Way to Creativity

August 2019 Suminagashi Marbling Class 

Since getting sick, I've struggled to find ways to be creative. The fatigue, the pain, the brain fog, the inability to find a comfortable position, the need to be reclining or lying down always limited my options for creativity. I'd get restless and frustrated with even simple sets of directions that were difficult to follow through my fatigue.

These things are all still limiting, but I'm starting to see new openings for creativity.

Until now, I've relied on the joy of photography and writing my blog. But, I rarely have energy to actually go through my photos or do anything with them after I take them! And my mind is racing with blog posts.

Silk Scarf Created During the Class

Recently one of my favorite local artists who 'gets' my illness, hosted a Suminagashi paper marbling class by Diane Maurer, an incredible local artist. Elizabeth has a new art store with space for classes, Art a la Carte, and I was SO EXCITED (yes, SO EXCITED!) to be able to go to Diane's class.

At 2 1/2 hours long and in the afternoon, the class was just doable--except that I needed a ride to and from with Mom. This is where my fatigue still gets me.

Papers and Envelopes Created During the Suminagashi Marbling Class


While getting to interact with other women, learn from one of the most skilled local artists we have, and support Elizabeth's new shop, I learned was able to create these papers and a scarf using the Suminagashi marbling technique, which was quite meditative and, shall I say, almost fool proof. 

It's something I loved, but couldn't manage on my own at home, so having a class was perfect.


Pussy Hats


Up until now, I've tried my hand at knitting small projects over the years. Recently, it's been knitting pussy hats in protest of our current commander in chief.


Pussy Hats with a Little Sparkle


I still knit one here and there, but I've never found knitting super relaxing or gratifying.


Ten Years Ago in 2009--Knitting for David

I'm always terrified of dropping a stitch and having now idea how to fix it!

As you can see, back in 2009 I took on a big project, knitting a baby blanket for my nephew, David, and it's probably the piece I'm most proud of, especially because I knitted that sucker through such incredible pain and feeling like shit.

Again, I was helped by my friend Anne who told me what pattern, stitch and yarn to use.


It Took Me Over a Year to Make This!


Maybe my memories of suffering while knitting have made it more difficult to pick up the knitting needles again and give it a try?


Oh, How I Loved It!

Because, when I look at this blanket, it makes me want to make another one!


I love the finished product. I've never fallen in love with the process.

But with the Suminagashi marbling, I fell in love with the meditative process of creating the designs. And so what if one of the designs isn't just what I was hoping for? It's a lesson in letting go and living in the 'gray zone', which is where I'm desperately trying to learn to live these days.


Doll Blanket for Elsa


The only other creative attempt I've made over the years was hand sewing, to which a high school friend introduced me. I fell in love with that at the time. It was something I could do for 5 minutes or one hour. I could stop when I needed to, it took little concentration, it was meditative, mistakes were easy to fix, it could be done reclining, and the finished product was gratifying.

Alia's introduction to me of this craft idea helped me through some tough, tough times.




But, to make one of these little hand-sewn blankets (of which I've only made two!), I rely on my neighbor to cut and prep all of the fabrics for me, as well as help to pick them out.




Two of my closest friends with CFS and POTS are incredible at handicrafts--specifically knitting and crocheting. I seem to be only aspirational in my desire to do these. I have little patience for trying to understand patterns, learn new stitches, and I stress about mistakes.

What I do know is that I used to love taking time to be creative. Before my illness, I would spend summers making scrapbooks, handmade cards, photo albums, gifts and whatever struck my fancy.

I found my greatest joy in dance--it was the fullest and most complete expression of who I was that I have ever experienced. I miss it deeply. I think I've spent the time since I could no longer dance searching for substitute that would fill my soul the way that dancing did. I also loved the high of playing saxophone (I haven't got enough hot air for that anymore!).

I've never been a gifted or talented artist--art class was always the class in which I needed 'extra help' --but I know that creativity comes in many forms and I know that it's essential for MY life. I was never an excellent dancer. But I loved it and I felt alive when I danced.

The Suminagashi class was a little taste of the high that can come from creating something beautiful.

I hope it's the beginning three very important things for me:

1. Taking time and prioritizing time to be creative
2. Finding more opportunities to be creative
3. Giving myself the freedom to try different ways to be creative 

How do you find time for creativity in your life? What makes you feel alive? What do you love to create?

Blessings,

Emily